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Tell us your
experiences with
Hydergine &
a Wellness Lifestyle
and how it helped you in taking back your brain & education.

My case is so complicated & there are many issues - it is hard to explain - so these are the points that help it to be understood:

#1) After 30 years of yoga and living as a healthy vegetarian and Wellness Consultant, New Thought Singer Songwriter who was a Musical Director of a Spiritual Center, and I taught Comedy Traffic School - and had more than enough energy left over for many creative projects... and then the whiplash + accident happened 4/5/05 and changed everything... I have been saving my life ever since.

#2) Much later it was discovered that the whiplash was so serious and taking so long to heal... due to a 4 month prior minor stroke 11/15/04 due to extreme stress after a 2 week hard move while working 3 part time jobs and homeschooling my son - it was thought to be bells palsy at the time because I lost my RIGHT smile and when it healed - we all thought it was over. Then, although I did not lose my smile again.

WHIPLASH (all back & neck pain & choking) + Cranial Nerve Injuries - numbness returned on the RIGHT side of my face but also around my nose, chin, lips, and tongue, and later it went over to the LEFT side too - around the LEFT ear and temple & mostly LEFT TMJ stiffening and pain as well as flushes of pain with stress, and Double Vision, Vertigo, (only able to sleep on my back all night with leg pillow lift for tailbone/left hip pain & heating pad for abdomen pain, a constant wired/tired feeling, constantly being cold with Headaches/Nausea - and Mild TBI (mild - due to taking Hydergine & learning always with a positive attitude - otherwise I am sure it would have been much worse.)

#3) Nearly 1 year after the accident an in-head bleed injury was confirmed with an MRI because of several TBI symptoms were added to the already complex whiplash injuries including several cranial nerve injuries and pain all the way up and down the spine from head to neck to tailbone. The prior loss of smile lasted 9 days and caused no pain - and I could still do my 1-2 hour yoga set. Just a loss of smile on my right side and it had fully healed months prior to the car accident.

#4) 2 years after the accident higher quality MRI showed multiple bleeds and because of it risky brainstem surgery was advised that had been done 140 times prior with mixed results. I was told I would be in a coma, paralized, crippled, or killed from doing the operation or not.

#5) Choosing to walk away from surgery until the accident injuries healed more made her Doctors and practitioners resign due to liability.

#6) Finding new Doctors who supported her Integrated approach and understood that Hydergine had played a huge role in her survival at the time of each stroke and now preventatively.

#7) After understanding that the Multiple bleeds found at the 3rd MRI and the history of symptoms since the accident... most likely meant the car accident had caused another bleed at the vulnerable cavernoma that had bleed months eariler. My new MD understood this right away after listening to all my symptoms, from the inflammation my Physical Therapist found from old blood contamination and high white blood cell counts at blood tests... and then my Neruologist put it all together and told me to to start treating as if it had bled and see what heppens.

#8) Then, finally I showed signs of improvement due to this approach of treating for "as if" there had been another bleed at the car accident'. Because of this understanding due to the infections ongoing and inflammation pockets in the left temple and tailbone that started to heal due to me understanding how the systems all work together through the Craniolsacral System and Lymph system...I and now I see that in time my case will teach many things - once there are more curious Doctors who would like to learn from it.

#9) Over 3 + years now and I am still dealing with living with all these symptoms I have learned to live with. My goal is to do a HYDERGINE & WELLNESS study with who ever will do that one... and then one with Novartis to get a Clinical Study going to widening the use of the blessed non-toxic drug HYDERGINE that I know and many of Doctors agree - saved my life.

Especially by taking it right after the car accident - otherwise I may not have been able to survive a re-bleed that makes each bleed more possible for more bleeds. Multiple in-head bleeds in my brainstem were found a year after the accident.

We know that the accident for sure made the cavernoma worse somehow because of the history of symptoms. Can it be proved - only in that how I healed it is by doing what would heal another bleed and by history the symptoms that started at the accident - then it makes sense. What doesn't make sense is that I have to wait to get the care I need until this can be proved when it is beyond what is currently known about cavernomas at this time - in the location where I have mine - the Ricticular Formation is still controvercial and it was very affected in my case - so in time more will be understood as to what studying my medical case and what it has to offer Brainstem Research.

And I learned about the new bill that just passed: Traumatic Brain Injury Act of 2008 I looked so healthy still from a lifetime devoted to being healthy - an ergonomic wellness lifestyle. My injury was not understood as serious because it was not seen and my symptoms were not understood because I looked so healthy and they did not know what to look for. Whiplash sometimes has many other symptoms that are complicated but it has never been so clear what those are. This is a bill to help funds ways to help people and learn and understand more about TBI. I have learned a lot about dealing with it through dealing with it daily and I know what can help it to be much less ways for our brain's to actually heal and even get more mental abilities. I am seeking Doctors who understand that it is important to learn about how I lived through multiple in-head bleeds?!? THINK ABOUT IT. I feel that it happened to me because God knew that I would speak up about the answers I found, the unjust process I was forced to go through, as it is well documented and known through SICKO. It is about to change to Universal Health Care and we need to make sure it gives people integrated options and has a ergonomic wellness approach to health - with preventative integrated manual therapies and supplements. Integrated Universal Healthcare sounds about right. I found out that what makes the system harsh is how sick you have to get before they get concerned about your test results - they only treat when it gets back enough instead of what you can do to help it beofe it gets bad. Medicine needs to take a step towards the inventor's mind - not just the scientific mind that aims to prove right or wrong ususally when conbined with the business mind. The Inventor's mind tests to find out what may be helpful to know - and yet knows he will learn either way and the healer only recommends what will do not harm and can always help in a wholistic way.

I am looking to a new healthcare
in America - and one day the world -
where the sick and wounded
will not have to fight for their care.

How 'bout....
NO-FAULT ACCIDENT INSURANCE?

Remember what the NO FAULT DIVORCE
did for the family?

It could change family life so much to have
universal healthcare - one that includes
"no-fault" insurance and insurance that allows people to choose an integrated path of healing.
(P.P.O. care for everyone who needs it.)

It is so stressful to have to fight for care -
it is so toxic and made all of my symptoms worse.
Even when you are not the one "at fault" as it is in my case, still the law suit process is very draining and at times I actually felt like it was killing me - just to have to try to explain the ordeal I had been through - was absolutely exhausting.
The woman who hit me also had the same car insurance company -
I found out that because I need more money
for care from my own inusrance company -
I have to sue her for her insurance money?

So I have to sue
my own company to help me?

Yep - that's our "democratic" system.

Why didn't they teach me this in all my years of public education?

The way it is set up... the Doctor's ususally fight eachother and get very irritated if you compare what another Doctor has said and they may say somthing to you but not put it in writing or refuse to make a statement in writing or write a letter that may help... everything they do can be turned against them so they are cautious if not agressive towards paitents who come with a law suit.
I see that this process only benefits the Insurance companies who use that confusion and margin of human errors in notating records, as well as intimidating amounts of paper work - all to avoid taking care of those that hired them to care for them - in case anything ever happens to them.
I was told by someone in the Insurance Industry that their goal with claims was weeding out anyone who does not do everything they ask in paperwork requests and further explainations that they purposely keep coming - and they then they offer a very low offer and people take it just to end the process that is so toxic while you are healing.
And this is all for the dim prayer of the care they need.
Most people give up... mostly because it is so toxic they have to stop. The insurance company employees are told to string it out until you give up, while looking to see where Doctors don't agree (which is most of the time) or all the paper work that they ask you to do shows what they need that then they can hold that against you.

CAN'T WE ALL JUST GET ALONG?

WHEN WILL THEY UNDERSTAND
THAT IT IS ALL ABOUT TO CHANGE
DUE TO IT BEING TOTALLY UNJUST
& THEREFOR BAD BUSINESS?

The worse part is that Doctors, understandably
when they know a law suit is involved
fear being grilled either way and many of them
won't even get involved and several even turned me down or resigned due to liability of not doing the operation and because I was also in a law suit and it's a bad combonation for them -
and I totally understand their position.

This is a system built to mistrust the patient when there is a law suit and use the human qualities of sometimes sloppy note taking or mis-informed claims, frequent wrong diagnosis, or just not paying attention, due to having a heavy work-load
and only seeing a patient 15 minutes.

So each busy Doctor "mistake" can cost a patient
the care they need in the insurance system as it is.

There are ways to counter the claims in medical records...
but it looks bad in a case to be correcting records all the time - yet sometimes explainations are needed.
In that case, write your Doctor a polite letter with your corrections and keep that as part of your records
that you should have a copy of and
keep track of to make sure there are
no incorrect statements on them
or things that need further explaination.

What is really is... when Doctors don't really pay attention
and omit, or some don't use intake paper or read ones given to them... they make choices without knowing
the health history of a patient
or what others Doctors have to add.

This is a form of Medical Identity Theft.

Everytime I saw a new Doctor I had to get them caught up with all my records and what has happened -
and with TBI this is really hard.
First I tried to do it in the office visit and it took too long,
I forgot important things and I would get frustated if they did not understand what I needed or what was the best next step to actually care for me.

I find all linear things harder to do now.
However, my artistic, creative, intuitive mind has never been stronger - it lives in the realms of the right brain which has always has been much accessible to me
than this left brain stuff.

So I made errors and so did Doctors... we are human
and well the beat goes on.
Now I am at Kaiser where there don't believe in intake paper all that much. Not being able to let your Doctor know you past health history is really not a good thing.
So either they have lengthy intake papers where you have to repeat it all again... in hand writing in those little spaces they give you to answer questions that may take more space... and well I do better on my keyboard where I can type as fast as I can think and change how I said it.filling out forms now literally freaks me out but I do what I can do... and pray for a better paperwork system.

THERE NEEDS TO BE A BETTER WAY TO DO THIS

THIS IS A SYSTEM THAT NEEDS TO CHANGE.

WE DON'T JUST NEED
UNIVERSAL HEALTHCARE FOR THE US
- WE NEED A WHOLE NEW
INTEGRATED APPROACH IN ALL OF HEALTHCARE?

AT THIS POINT IT IS NOT HEALTH OR CARING.

We all need to have our own records stored on-line.
When we go to a new Doctor you give them access to it!
That each person actually fills out diffenent intake papers at each different offices is so yesterday & bad for trees.

So I took the time at that computer to write it all out with a headache/nausea and all my other symptoms... yet I did it with the thought of offering some clarity to my symptoms... I would have the time to review it and correct it until it was understandable. There have been some advances on the discovery process of what happened to me at the accident and all I have been through on this process of recovery from the accident.
Since the accident there have been current severe symptoms that occured in 2/2008 and since... some Doctors did not even read the paperwork I suffered to write for them - to help catch them up and summarize.
Some were grateful because they really wanted to help me while others suspect of anyone with TBI who is able to document all this... did they ask my IQ (140+) before the accident - and know that there are different kinds of TBI?
Also, I have been doing many things to use my brains plasticity to heal - like doing Brainage with my son on the Wii - also the Wii Fit is helping me with my vertigo too.

Imagine how hard it was just to get
to the Doctors even when you are too weak -
you still have to get there...
if they are going to help at all.
Then, more paperwork while you wait as long as they need - but they don't like it if you are late.
Or they don't want in-take paper which is worse - they make choices that is based on what is best for everyone.
We need to be compared with Our Own Optimal Health.

What I found is that if you have something really
life-threatening you most likely will have a
harder time getting care -
(unless you are really wealthy and can afford clinics that specialize in life-threatening conditions)
espeically if it is hard to diagnoise or
worse yet "brainstem research".

I found that many Doctors will not even take you then.

THERE NEEDS TO BE A FAST TRACK FOR THOSE WITH LIFE THREATENING CONDITIONS

Only if I heal can I prove that's what it was -
an injury from the car accident and not only my
"birth defect" cavernoma that just happened to bleed.

Neurosurgeons at this time don't feel that cavernomas can bleed from truama - as mine clearly did from the evidence based research of what finally started helping was when they treated "as if" a re-bleed of my cavernoma had happened - what what would happen - with the symptoms and conditions they found and that was when I started showing signs of getting better.

Insurance at this time
is not liable for a birth defect... in a car accident
so my own insurance company
may try to use that against me.

This is the insurance I had been paying for - over 20 years - and it had been a deal that I thought was fair... until I came to see how
insuranism in the US works today.

Because I am hurt still - 3+ years later - and now I am living with a life-threatening condition now due to the accident
complicating a vulnerable cavernoma
that had recently bled & healed.
And the Whiplash+ keeping me from my yoga practice and all the many activities that kept my cavernoma in good shape all my life up until the point where it first bled due to stress -
from a hard 2 week move while working several jobs and homeschooling our son.

With multiple bleeds found - it shows that the first mild stroke healed. Yet it was the next bleed only 4 months later that was complicated by the whiplash car accident recovery as well and the other ways the two may be related -
with several Cranial Nerve Injuries of cranial nerves that all have roots in the pons.

I have mild TBI - (mild due to taking Hydergine & continually learning new things) from an in-head injury that was not really understood until years after the accident that altered everything in my life - and made me stop everything I was doing to focus full-time on saving my life - mostly on my own.

THIS WAS AN IN-HEAD INJURY!
So due to all this I knew I so had to find out
about my civil rights!
Who says that if you don't splatter -
it don't matter...
THE EGG SHELL SKULL RULE says otherwise.

I wondered with all my years of education
why I had not been taught how to deal with real life stuff like getting hurt in an car accident - with all you have to deal with afterwards, medically, legally, and while you watch your whole life as you knew it stop.
With "insuransim" how it works is not straight forward - you have to dig for the truth and be proactive in the process as much as possible and if you are really hurt this is not very likely to happen.

REMEMBER though...
this is something
that could happen to anyone -
you or someone you love

I was pretty far into the legal process when
I found out that
THE EGG SHELL SKULL RULE exits.

In my case... THE EGG SHELL SKULL RULE is proven here with a statement from the Angioma Alliance who says that it takes 2 years for an in-head bleed to be stable - it had been healed only a few months. "Unfortunately, cavernous angiomas that have bled are those that are the most likely to bleed again, particularly in the first two years after their initial bleed. It is also important to note that a hemorrhage in a cavernous angioma in the brain stem can be life-threatening." From the AngiomaAlliance Web site The Egg Shell Skull Rule says that YES they are responsible if they make a wound that has healed but it still vulnerable into a life threatening situation! YES she hit me, yet I found that the process of proving that was true was killing me.